Elche (Alicante), Jan 23 (EFE). - The Association of Patients with Amyotrophic Lateral Sclerosis (ALS) of Valencia has asked the president of the Generalitat, Alberto Fabra, to mediate to avoid paying the costs of medication and orthopedics.
The regional president of this group, the Elche Nieves Garcia has moved Fabra personally this request in the presence of the Minister of Health, Social Services and Equality, Ana Mato, just after both preside delivering a national award from the Spanish Committee of Persons with Disabilities (CERMI) to the city of Elche, event held in the town hall of Elche.
Speaking to EFE, Garcia explained that with the last change of legislation on high-dependency, from now on they must advance payment of medication and orthotics in the future, get the money back.
"However, there are many victims who do not have money and they will stay at home locked up," he warned.
This is so, according to Garcia, because ALS is a disease that develops in a short time many expenses involved, such as the need to hire a 24-hour personal assistance for disability involved.
"If you have to choose between eating and going out in a wheelchair that costs 900 euros, you have to prioritize," said.
According to the group, in Valencia there are 400 people with ALS, although there are "high turnover" because the aggressiveness of the disease causes numerous deaths within two to three years.
After hearing the claim and waiting for a meeting requested by the group with the general managerPatient Care of Catalonia, Teresa de Rojas, the president is committed to trying to find a solution, according to Garcia. EFE